Available online
The following organizations and programs listed here stand ready to provide patients, families, and healthcare providers with information about TS.
Stepping Stones
www.steppingstones.nutropin.comThe goal of Genentech's Stepping Stones program is to help you and your family work through the day-to-day demands of Nutropin therapy. The program offers regularly updated information, tools and resources—all geared toward helping you make the most of your child's Nutropin therapy. Clicking on any of the links below will take you away from the Nutropin Growth Hormone Web site. These links lead to external Web sites not created, managed, or maintained by Genentech. Genentech is not responsible for, and does not necessarily endorse, the opinions or products presented on these Web sites.
Turner Syndrome Society of the United States
www.turner-syndrome-us.orgThe Turner Syndrome Society of the United States creates awareness, promotes research, and provides support for all persons touched by TS.
Turner Syndrome International Registry
www.tsregistry.orgThe mission of the Turner Syndrome International Registry (TSIR) is to advance TS research and care by bringing patients, health care providers and researchers together. The TSIR houses two very different but complementary registries, one for patients and the other for health care providers.
Turner Syndrome Clinical Studies at National Institutes of Health
www.turners.nichd.nih.govThis NIH page provides an overview of Turner syndrome, including clinical features, genetic features, and a look into current research on TS.
The MAGIC Foundation
www.magicfoundation.orgThe MAGIC Foundation provides support and education services for pediatric and adult patients with chronic and/or critical disorders, syndromes, and diseases related to growth and/or growth hormone deficiency. Founded in 1989 as a nonprofit organization to help families affected by growth disorders, MAGIC has expanded its original charter to assist individuals with adult growth hormone deficiency. Its new adult division offers a separate newsletter as well as other services focused on adult issues.
Human Growth Foundation
www.hgfound.orgThe Human Growth Foundation (HGF) is devoted to providing education, research, and advocacy for children and adults with growth hormone-related disorders and for their families. HGF has chapters in 30 cities in the United States, Canada, and Puerto Rico. It consists of healthcare providers, patients, family members, and friends of those affected by GH deficiency. Its goals include support of research into normal and abnormal growth, parent education and service, education of healthcare providers and the public, and advocacy on behalf of affected patients and their families.
